Frequently
asked questions

Pheochromocytomas form in the adrenal glands just above the kidneys, while paragangliomas are typically associated with the sympathetic nervous system.

Pheo and para are rare, life-⁠threatening diseases. That is why you need to identify symptoms, understand genetics, and manage diagnostic challenges in pursuit of an accurate diagnosis.

There are over 100 different signs and symptoms associated with pheo and para. Some common signs include headache, high blood pressure, anxiety, and more.

Genetic testing can provide information about a person’s genetic background. It’s useful in many areas of medicine and can change the medical care you or your family member receives.

Blood and/or urine tests are commonly used to detect increased levels of the hormones known as epinephrine and norepinephrine.

Several types of medical experts and specialists are involved in treating pheo and para. Oncologists, endocrinologists, and rare disease specialists may be part of your treatment team.

In addition to leaning on—and learning from—your healthcare team, there are a variety of patient groups and online organizations that provide support, answer questions, and offer resources to help you on your journey.

Connect with advocacy and research organizations dedicated to helping people with pheo or para learn about their condition and take action.

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