Not an actual patient.
Pheo and para are very rare, so doctors often have limited experience identifying these diseases
Several comprehensive tests are used to help diagnose pheo and para- Blood and/or urine tests check for abnormal levels of the hormones or
- or are also useful in detecting pheo and para tumors
- are useful in highlighting very specific areas in the body where tumors reside
Once tumors are identified, your caregiver can decide on the best treatment options.
Early detection is key, and it is important to be your own health advocateFor conversations with a healthcare professional, keep the following process in mind:
Living with pheo and para
Diagnosing a Rare Disease
Dave Bassham and endocrinologist, Dr. Dillon, talk about how hard it is to get pheo or para on doctors’ diagnosis radar.
Next section: Turn awareness into treatment